The links  are presented expressly for informational purposes only.  In no way are any of the materials presented meant to be a substitute for professional medical care or attention by a qualified practitioner, nor should they be construed as such. 

ALWAYS check with your doctor or ET if you have any questions or concerns about your condition, or before starting a new use of information in, on, or implied by this web site or any linked web site.
 

Related Support Organizations

UOAA 

International Ostomy Association

United Ostomy Association of Canada

Friends of Ostomates Worldwide – USAhttp://www.fowcanada.org/

Osto Group (for Ostomates without insurance in the U.S.) http://www.glo-uoaa.org/

Crohn’s & Colitis Foundation of America

Crohn’s & Colitis Foundation of Canada

Oley Foundation (for people on intravenous or tube-fed nutrition)

Association for the Bladder Exstrophy Community

Youth Rallyhttp://www.ibdride.org/http://www.digestivedisorders.org.uk/

International Foundation for Functional Gastrointestinal Disorders

National Association For Continencehttp://www.ureterosigmoidostomy.com/

The J-Pouch Group

Quality Life Association (for Continent Ileostomates)

Ostomy Connection https://ostomyconnection.com/

WOCN Association https://www.wocn.org/

Stolen Colon http://stolencolon.com/ostomy-top-10-reasons-2/

 The Colon Club www.thecolonclub.org 

Discussion Boards

UOAA Discussion Board on this site http://www.ostomyinternational.org/cgi-bin/dcforum/dcboard.cgi

J-Pouch Site Discussion Boardhttp://www.ostomates.org/cgi-bin/yabb2/YaBB.plhttp://p207.ezboard.com/bostomyforum66946

Ostomy Aid (from WOC Nurses)

IBD Sucks! (see esp. “Dear Baggy”) http://www.dragonpack.com/ibdsupport/

alt.support.ostomy Newsgroup

alt.support.crohns-colitis Newsgroup

Professional Societies

Wound, Ostomy & Continence Nurses Society (WOCN) 
WOCN Referral Database – Find an ET

American Society of Colon & Rectal Surgeons

American Gastroenterological Association

American Medical Association

American Urological Association

Ostomy Group Newsletters

http://www.geocities.com/mr-ostomy/thisnote.html

Jacksonville FL TheMailbaghttp://www.ostomy.evansville.net/menunews.htmhttp://www.milwaukeeostomy.org/micascope/micascope_archives.html

North Central OK Ostomy Outlook

http://www.ostomyok.org/newsletter/http://www.ostomy-winnipeg.ca/woain_ot.htmlVancouver Ostomy Association

Other Newsletters

The Pull-Thru Network Newshttp://cms.clevelandclinic.org/digestivedisease/body.cfm?id=79

Hereditary Colon Cancer Newsletter

Cancer Information

American Cancer Society 

Cancer.com

Cancer Care, Inc

Cancer Hope Network

Cancer Research Foundation of America (CRFA)
CRFA Colorectal Cancer Awareness

Cancer News on the Net

Cancer Nutrition Centerhttp://www.ianr.unl.edu/pubs/health/nf325.htm

Cancersource.comhttp://www.cancerconsultants.com/

Bladder Cancer Advocacy Networkhttp://blcwebcafe.org/default.asp

Colon Cancer Alliancehttp://rattler.cameron.edu/colon/http://www.meds.com/colon/colon.html

Colorectal Cancer Coalition

What Is Colorectal Cancer? (MayoClinic)http://personalweb.sunset.net/%7Emansell/polyp.htm

Colorectal Cancer Networkhttp://www.acor.org/

National Breast Cancer Coalition

National Cancer Insitute (NCI)http://www.cansearch.org/

OncoLink – U. Penn. Cancer Resource Center

Vital Options TeleSupport Cancer Network

The Wellness Communityhttp://www.takingthefearoutofcancer.com/

New Medicines in Development / Cancer

Advocacy Related Links

UOAA Advocacy Section on this Site 

Patient Advocate Foundation

U.S. House of Representatives Home Page

U.S. Senate Home Page

Americans with Disabilities Act Page

Fedstats – Federal Statistics

Digestive Disease National Coalition (DDNC)

Advocacy for Patients with Chronic Illness (help with various legal issues)

One Voice Against Cancer (coalition of non-profit organizations advocating for cancer-related appropriations) http://www.medicare.gov/FraudAbuse/Overview.asp

FirstGov for Consumers (US Government Consumer Info)

US Government Printing Office (Access to Government Info Products)

TRICARE, US Military Health System

Partnership for Prescription Assistance (coalition of pharmaceutical companies, health care providers and advocacy groups)

Child Related Links

The Pull-thru Network (Congenital colorectal, anorectal and urogenital malformations) http://www.guardiansociety.com/

About Kids GI Health (Hirschsprung’s & motility issues)

http://www.growingupibd.org/Growing Up With IBDhttp://www.nidkids.org.au/

Spina Bifida Association of America

When Chronic Illness…or Other Medical Problem…Goes to School

Assistance for Education of Children with Disabilities

Medical Information

PubMed (MEDLINE) Search 

MEDLINEplus (more consumer oriented medical info)

National Library Of Medicine

National Network of Libraries of Medicine

National Institute of Diabetes, Digestive & Kidney Diseaseshttp://www.ddc.med.ucla.edu/

Univ of Louisville Colon & Rectal Surgery

Medsite (discount medical books & supplies)

International Adhesions Society

New Medicines in Development (Pharmaceutical Research & Manufacturers of America)

Now You Have a Diagnosis: What’s Next? (US Gov’t Agency for Healthcare Research & Quality)

ClinicalTrials.gov (US National Institutes of Health)

ClinicalTrials.com (Pharmaceutical Research Plus, Inc)

http://www.arthritisinsight.com/Biopharmaceutical Research Companies

Food & Nutrition

The American Dietetic Association 

CNN Food & Health http://www.cyberdiet.com/

General Health Information

Health Finder  (US Government Gateway to Health Information)

World Health Organization (WHO)

American Public Health Association

National Institutes of Health

www.health.gov (portal to US Government health sites)

National Health Information Center

MayoClinic.com

HealthWorld Onlinehttp://www.usatoday.com/news/health/healthindex.htm

Stanford University Health Libraryhttp://www.drweil.com/http://www.birthdefects.org/

HealingWell.com – Crohn’s/Colitis Resources

Other Related Sites

Canadian Society of Intestinal Research 

Nonprofit Organizations Worldwide

ElderWeb – Eldercare, Senior Housing, etc.

Disabled American Veterans